Zoey Henry age 9
Zoe was born with a Congenital Diaphragmatic Hernia in 2008. She was given a 25% chance of survival. After almost 3 months in the hospital, including 2 weeks on ECMO ( a bypass machine), multiple ventilators, more meds and tubes than you can count, endless conversations with doctors and nurses and lots of love and prayers, Zoe came home. She was on oxygen 24/7, a feeding tube, meds that were given 7 times a day and complete lockdown for fear of germs. With love, therapy, dedication, tears and lots of hugs and smiles over the next three years she slowly started hitting some major milestones. She started eating orally when she was almost 2 and started walking at 2.5. She now battles Pulmonary Hypertension among other things, but never lets it slow her down, even when inpatient she is singing up a storm and crafting away. She started 2ndgrade this year and continues to make all those that meet her fall in love with her and always brings a smile to everyone's face. She is the toughest 9 year old around and always faces each day with a grin. She loves to bake, do crafts, play on the swings and spend time with her cousins. Pulmonary Hypertension has got nothing on her!
Ashlynn Fletcher Age 8
She is 8 years old. She is a 3rd grader at Shasta Elementary in Klamath Falls, Org. She was diagnosed with idiopathic pulmonary arterial hypertension when she was 5 year old.
She loves drawing and coloring, singing and climbing things! She would love to play sports but can not due to her PH
Ashlynn is 8 years old! She was diagnosed with idiopathic pulmonary arterial hypertension when she was 5. She is a middle child with an older sister Kaylee who is 10 and a younger sister Tayla who is 6. She is currently on Sub-Q remodulin, and she doesn't allow that to stop her from living the life she so richly deserves. She is so positive and has so much courage and strength for her age!! There's no doubt she will make it far in life! With of course the help from her cardiologists and pH team❣
Brooklyn Clasby age 10
Brooklyn Clasby, 9 years old, was diagnosed with Idiopathic Pulmonary Arterial Hypertension when she was 3 years old. Seemingly a healthy child, she would play until she started complaining of her “heart hurting” and was taken to the pediatrician where they noticed an elevated resting heart rate.
An ECHO was ordered which revealed severe Pulmonary Hypertension. Brooklyn was immediately started on IV medications and spent a month in the hospital. Two years after diagnosis, her Doctor at Denver Children’s recommended that the family relocate to sea level to help with quality of life. Brooklyn, along with her parents, sister and brother moved from Colorado to Washington in 2012. Her health continued to decline after the move to Washington.
She began to prepare for a heart and lung transplant when her Doctor presented the idea of a more experimental type surgery. She had a Potts shunt surgery in 2014. This surgery greatly improved her quality of life. She was able to be switched from IV medications to all orals and is participating in some sports. Brooklyn enjoys softball, volleyball, and swimming. She loves all animals and hopes to be a veterinarian when she gets older. Brooklyn continues to have many challenges associated with her PH, but always maintains a positive attitude and good sense of humor.
- 2 Bed and 2 bathrooms
- Based on availability. Must be used by 12/31/2018.
- Possible destinations include Hawaii, Mexico, Napa, and many many more.
Museum of Pop Culture Passes - 4 passes to Museum of Pop Culture (MoPop)
El Gaucho Gift Card ($250)
Fairmont Olympic Hotel - Seattle - 2 nights in Deluxe Accommodations with dinner for 2 at Shuckers.
The 5th Avenue Theatre - Voucher for 2 tickets to ONE of the follwing shows:
- Ragtime 10/13-17-10/27/17
- Holiday Inn 11/24/17- 12/8/17
- Mamma Mia 2/2/17 - 2/16/17
- Kiss Me, Kate 4/6/18 - 4/20/18
Thirsting for a Cure 2017 is being hosted by the Portland Metro/SW Washington PH Support Group. This dedicated team of PH patients and caregivers has spent countless hours to plan the event in an effort to raise both awareness and research funds for Pulmonary Hypertension. We hope to see your at the event!
*The Pulmonary Hypertension Association (PHA) is a 501 (c)(3) organization. Tax ID 65-0880021. To learn more about pulmonary hypertension PHA visit www.PHAssociation.org